Félix, our “little” happiness
On the occasion of International Rare Disease Day 2011, we’d like to share with you a letter written to our son Félix, who will be 2 in April and suffers fromhyperchylomicronemia.
It’s been almost two years, Felix, since you changed our lives forever. You are a daily ray of sunshine for us. When you were 5 weeks old, you were very ill and hospitalized for 3 weeks, at which point you were diagnosed. Since that day, you’ve been our very own superhero. You never cease to amaze us with your strength of character and your joie de vivre. Even when you’re going through tough times, you’re still such a strong, combative little boy.
When we, your parents, have more difficult moments in our daily lives, all we have to do is look to you for the strength to carry on. You are our strength, our energy, our “little” happiness. You’re not even two and you’ve already been through so much. Your very rare disease, 1 in 1 million, makes you even more unique than you already are. Know that we will always be there for you, to protect you, to support you and to love you more than anything.
Find out more about hyperchylomicronenia >>>>