The challenge of the 18th
Congenital hyperinsulinism
This year marks our 18th year living with a rare disease. Rare Disease Day is the perfect time to highlight a new challenge facing us all: changing GPs.Our daughter Catherine’s transition from hyperinsulinism to adulthood means she can no longer be cared for at the children’s hospital. While we sometimes feel we know more about the disease than the doctors, the fact remains that the doctor who knew the most will no longer be the one to advise us. It’s like starting all over again…Isabel, Claude and Catherine
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