WELCOME TO RQMO/ Quebec Coalition of Orphan Diseases
Orphan Diseases
Not so rare, 700,000 Quebecers affected
Activities
RQMO 2026 Education Day
This year, RQMO’s Education Day will be held at the Travelodge Hotel in Quebec City (3125, boulevard Hochelaga, Quebec), with the theme “The impact of rare diseases – towards greater inclusion”.
The event will be held in a hybrid format. Participants will therefore be able to attend in person or remotely via Zoom, so that those who are unable to travel or attend in person can still take part in the activities.
This awareness-raising day is intended as a forum for exchange, reflection and sharing about the realities experienced by people with rare diseases. We want to highlight the day-to-day challenges, as well as concrete ways of building a more inclusive society.
Throughout the day, we will address several aspects, including the social impacts related to education, employment, and mental health. We will also explore the physical effects—whether visible or invisible—and their influence on social participation and quality of life.
Testimonials from those directly concerned will enrich these discussions, bringing a human, authentic and essential perspective to these issues.
By bringing together different points of view, this day aims to better understand the impact of rare diseases and to encourage concrete action in favor of fairer, more sustainable inclusion.
RQMO on the move
Special Event with Cathy Laroche
A big thank you to Cathy Laroche for her initiative and dedication in organizing this wonderful day, which took place on July 26!
This wonderful event, which began at Fromagerie Lemaire in Saint-Cyrille-de-Wendover before continuing at Bar Le Rebel in Sainte-Perpétue, brought together many people in a warm, festive, and supportive atmosphere. There was music, family activities, a mechoui, and plenty of opportunities to socialize!
The RQMO is grateful to have been able to participate in this unifying event, which not only raises funds for a worthy cause but also raises public awareness of the realities faced by people living with a rare or orphan disease and their loved ones.
Thank you also to everyone who attended, the volunteers, and the partners who helped make this day a success. Together, we’re making a real difference.
Smith Magenis Community Picnic
On July 24, 2026, the Smith-Magenis Syndrome community picnic was held at Jarry Park in Montreal.
A warm atmosphere, filled with kindness and solidarity, marked this wonderful day. Thank you to everyone who attended for sharing this special moment with us.
A day of connections, sharing, and solidarity
On Saturday, July 4, 2026, the RQMO Stickler and Marfan Syndrome community and the Association for People with Limited Mobility participated in a friendly outdoor gathering to discuss shared challenges and realities. It was a wonderful gathering, filled with enriching discussions, sharing, and solidarity.
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You’ll find announcements of activities and news about rare diseases (research projects, clinical trials, new drugs, etc.). Maybe even someone with the same rare disease as you!