WELCOME TO RQMO/ Quebec Coalition of Orphan Diseases
Orphan Diseases
Not so rare, 700,000 Quebecers affected
Activities
RQMO 2026 Education Day
This year, RQMO’s Education Day will be held at the Travelodge Hotel in Quebec City (3125, boulevard Hochelaga, Quebec), with the theme “The impact of rare diseases – towards greater inclusion”.
The event will be held in a hybrid format. Participants will therefore be able to attend in person or remotely via Zoom, so that those who are unable to travel or attend in person can still take part in the activities.
This awareness-raising day is intended as a forum for exchange, reflection and sharing about the realities experienced by people with rare diseases. We want to highlight the day-to-day challenges, as well as concrete ways of building a more inclusive society.
Throughout the day, we will address several aspects, including the social impacts related to education, employment, and mental health. We will also explore the physical effects—whether visible or invisible—and their influence on social participation and quality of life.
Testimonials from those directly concerned will enrich these discussions, bringing a human, authentic and essential perspective to these issues.
By bringing together different points of view, this day aims to better understand the impact of rare diseases and to encourage concrete action in favor of fairer, more sustainable inclusion.
RQMO on the move
Charity Art Auction to Support Research on Orphan Diseases
The event will take place on September 10, 2026, starting at 6:30 p.m. at Le Grand Chien (275 Rue du Parvis, Québec, QC G1K 2M8).
This auction is organized by Marie-Noël Labbé-Blondeau to support people living with rare diseases.
For just $30, enjoy a wonderful evening featuring: a DJ, appetizers, cocktails, and an art auction.
The funds raised will be donated to three beneficiary organizations.
To learn more and book your tickets, click here.
You can learn more about their stories by visiting the auction page. Every bid makes a difference. Click, explore the artworks, and place your bets now!
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You have just learned about everything that the RQMO does for people with rare diseases and their families.
Help us continue to help them.
You’ll find announcements of activities and news about rare diseases (research projects, clinical trials, new drugs, etc.). Maybe even someone with the same rare disease as you!