Mission
The Regroupement québécois des maladies orphelines (RQMO) / Quebec Coalition of Orphan Diseases, founded on International Rare Disease Day in 2010, brings together rare disease associations, individuals with rare diseases, parents of affected children, caregivers and others interested in rare diseases.
RQMO's Mission
- Offer an information and support service for people suffering from a rare and orphan disease, for their families and for health professionals via its iRARE Centre.
- Collect and share information on rare diseases and issues surrounding rare diseases.
- Raise awareness among the public and the medical community about rare and orphan diseases.
- Advance knowledge on various rare and orphan diseases by promoting exchanges between patients and researchers.
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The RQMO is an association registered with the Registraire des entreprises du Québec (Quebec Enterprise Registrar) (#1166490178) and a charitable organization registered with the Canada Revenue Agency (#812655603 RR 0001). The RQMO issues tax receipts to its donors.
The founding of the RQMO
The Regroupement québécois des maladies orphelines was founded in 2010 by Ms Gail Ouellette and representatives of the following associations:
- CORAHM (Corporation de recherche et d’action sur les maladies héréditaires- Saguenay-Lac-St-Jean)
- Association canadienne des ataxies familiales – Fondation Claude St-Jean (Ataxie Canada/Ataxia Canada),
- Association québécoise des personnes de petite taille (AQPPT)
As well as by two people affected by Fabry disease and Morquio disease, respectively.
The RQMO is a member of the following organizations:
- Canadian Organization for Rare Disorders (CORD)
- Coalition priorité cancer au Québec
The RQMO is a partner of the following organizations:
- Montreal Clinical Research Institute (IRCM)
- Montréal InVivo (Committee on Rare Diseases)
- CATALIS, Clinical Research Quebec
- Network to advance research on rare diseases in Quebec (RARE.Qc)
- Canadian Rare Disease Network
