Other ways of helping
ARE YOU A PATIENT OR A CAREGIVER?
Make your rare disease or that of your loved one known to doctors and health professionals and help improve care and services in your area
Become a Patient Partner or Caregiver Partner
- CHUM (Montréal): Become a Patient Partner (chumontreal.qc.ca) CIUSSS-West-Central Montreal
- CHU de Québec: Submit your patient-partner application | CHU de Québec-Université Laval (chudequebec.ca)
- CHUS (Sherbrooke): Patient-partners – CHUS Research Center (crchus.ca)
Other programs:
- Become a partner – CISSS de l’Outaouais (gouv.qc.ca)
- User participation – CIUSSS MCQ (Mauricie-Centre of Quebec )
- CIUSSS Capitale Nationale DQEPE_FicheSynthese_ApprocheUsagerPartenaire.pdf (gouv.qc.ca)
Ask the CISSS or hospital in your region for such a program.
YOU ARE HEALTHY OR YOU DO NOT HAVE AN ILLNESS THAT PREVENTS YOU FROM DONATING SOME BODY LIQUIDS OR TISSUES
Here’s what you can do to help people with rare diseases
Give:
- Blood
- Plasma
- Stem cells
- Umbilical cord blood
- Breastmilk
These biological components are the basis of several treatments for many rare diseases. See the websiteHéma-Québec to find out if you can be a donor. You could save a life!
Sign your organ donation card
- Organ and tissue donation
- Donation after death
- Living donation (a kidney or part of the liver)
See Transplant Quebec | Organ donation, together for life. (transplantquebec.ca)
