A spirit of steel in a body of glass
I have osteogenesis imperfecta (OI) type 5. This type was found in our family about ten years ago. There are about 6 cases in Quebec.
From birth to around age 7, our bones are very fragile. From the age of 7 until the end of growth, things get better. But we break one of our long limbs 3 to 7 times a year. My father had it, two of my brothers, me and my son. I’m 47 now. I’ve had over 120 breaks and more than 20 operations.
Marc Pilon, Sherbrooke, Quebec