ZEBRA + FEBRUARY = MONTH OF ZEBRUARY
The RQMO created the “Month of Zebruary” to highlight International Rare Disease Day throughout the month of February.
During this month, we organize activities to raise awareness about rare and orphan diseases, which symbol is the zebra.
MONTH OF ZEBRUARY 2023
Round table on awareness and training on rare diseases in the medical community.
MONTH OF ZEBRUARY 2022 - Theme: The undiagnosed
Month of Zebruary was launched on February 1, 2022 at Complexe Desjardins in Montreal.
The president of the RQMO launches a series of “Zebinars” which will be presented during the Month of Zebruary.
Dr Nicolas Gauthier presents the “Screen4Rare” project which aims at detecting rare diseases as early as possible to avoid diagnostic delays.
The “Réseau ensemble” brings together experts from France and Quebec in clinical, health IT and artificial intelligence to set up a “learning” health system that fundamentally relies on the reuse of “real-life” data routinely produced in the context of health care or collected by patients, to improve and accelerate the diagnosis and treatment of patients with rare diseases.
Dr. Serge Rivest presents the “Research and Innovation Program on Rare Diseases” (PRISMES) which, in collaboration with the Canadian project “Care4rare”, aims to discover genetic variants explaining undiagnosed diseases.
Dr. Kristin Kernohan introduces us to the “Care4Rare” project which object is to identify new disease genes and develop new technologies for molecular diagnosis.
Mr. Frank Béraud, President and CEO of Montréal InVivo, presents the action plan prepared with the members of the Montréal InVivo Rare Diseases Committee.
Ms. Sharon Terry is President and CEO of Genetic Alliance. She tells us about her organization’s initiatives: patient registries and a genomic initiative.
Medical students take part in our "Rare Geniuses" competition
The RQMO invited medical students to come and measure their knowledge about rare diseases during our educational competition, “Génies en rare” (Rare Geniuses), pitting teams of four players from different faculties of medicine in Quebec against each other.
To prepare, they studied the 152 questions on rare diseases with our online learning tool (flashcards).
Check out our “Rare Geniuses” learning tool on Brainscape.
For this first edition, eight teams competed for a $2,000 prize. The competitions were virtual and open to the general public. The teams came from the universities of Montreal, Sherbrooke and Laval.
The winners were the four students from RÉMUL (Regroupement des étudiants de médecine de l’Université de Laval).
Our sponsors for Month of Zebruary 2022.
