Educational day

A big thank you for this wonderful RQMO educational day!

The RQMO educational day, themed “The Impacts of Rare Diseases—Toward Greater Inclusion,” was a resounding success!

We would like to extend our heartfelt thanks to everyone who contributed to its success: our valued sponsors, without whom this event could not have taken place; our member associations; participants; speakers; those who shared their personal stories; and our volunteers.

Thanks to your presence, your generosity, and the richness of your discussions, this event provided a valuable opportunity for reflection, sharing, and raising awareness about the realities faced by people living with rare diseases.

The discussions and personal stories helped us better understand the many impacts of rare diseases—whether social, physical, or psychological—and to reflect together on concrete ways to foster a more inclusive society.

Thank you to everyone for making this day such a heartfelt, unifying, and hopeful occasion.

See the program
Sponsors
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Sponsors
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See the program
The odyssey of the undiagnosed

Watch the day’s lectures on our YouTube page

  • Testimonials from an adult and a parent
  • Representative of SWAN UK (Syndromes Without a Name – UK)
  • Launch of the “Living without diagnosis” guide with the Rare Disease Foundation
  • Advice from a psychologist

Interview with family physician Dr. Andrée Yergeau:

“How to get doctors to
to think of the rare “
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