This "rare community" is a gathering of individuals affected by Arnold-Chiari malformation and syringomyelia.
We help them meet virtually to discuss their experiences and to define future projects. This is a web page dedicated to them to regroup relevant documents.
To join this community, contact us. (Note that this is open to Quebec residents only)
Documents
- Chiari malformation | Neurosurgery Inselspital Bern
- Chiari malformation – Soothing S&C
- Diagnosis and care (Haute autorité de santé – France)
- Arnold-Chiari Malformation (English)
- Conquer Chiari” search article library
- Article “Denervation of rectus capitis posterior minor as neglected factor in Chiari malformation type I revealed by double-blinded prospective study“
- Consult the medical literature:
Network of reference centers (France)
- The C-MAVEM networkChiari and rare spinal cord and medullary malformations