WELCOME TO RQMO/ Quebec Coalition of Orphan Diseases
Orphan Diseases
Not so rare, 700,000 Quebecers affected
ZEBRA MONTH 2026
RQMO 2026 International Rare Disease Day
RQMO’s International Rare Disease Day 2026 was held on February 28 at the Sandman Hotel in Longueuil.
Under the theme “The human beyond the rare disease”, we wanted to highlight an essential reality: a person is never defined solely by his or her illness. Behind every diagnosis lies a story, strengths, passions and a life that goes far beyond the disease.
The day was an opportunity to celebrate resilience, better understand the issues surrounding rare diseases, and honor the people who live with them.
Highlights of the day included raffles held with on-site participants, the presentation of the Gail Ouellette 2026 Award to Dr. Réal Le Gouëff, in recognition of his remarkable commitment to his patients, and the presentation of a touching video featuring short testimonials from people who don’t define themselves by their rare disease.
Our warmest thanks to everyone who attended, as well as to our speakers and valued sponsors, whose support made this event possible.
CONTACT OUR iRARE CENTER FOR PERSONALIZED HELP FOR YOURSELF, YOUR CHILD OR A RELATIVE. FREE, BILINGUAL SERVICE OFFERED BY A PROFESSIONAL
You have just learned about everything that the RQMO does for people with rare diseases and their families.
Help us continue to help them.
You’ll find announcements of activities and news about rare diseases (research projects, clinical trials, new drugs, etc.). Maybe even someone with the same rare disease as you!