WELCOME TO RQMO/ Quebec Coalition of Orphan Diseases
Orphan Diseases
Not so rare, 700,000 Quebecers affected
CONTACT OUR iRARE CENTRE FOR PERSONALIZED HELP FOR YOU, YOUR CHILD OR A LOVED ONE. FREE, BILINGUAL SERVICE OFFERED BY A PROFESSIONAL
DO YOU NEED INFORMATION ON YOUR RARE DISEASE? WE WILL FIND FOR YOU :
- Documents for you and your healthcare team
- Clinics or expert doctors
- Existing treatments or treatments in development
- The status of research and if there are any clinical trials?
- Information on genetics, heredity and genetic testing
DO YOU NEED LISTENING, HELP, SUPPORT, RESOURCES? WE WILL FIND FOR YOU :
- Government services
- Community resources
- People with the same illness as you in Quebec
(matching service)
YOU DO NOT HAVE A DIAGNOSIS ?
We will try to direct you to the right place to get a diagnosis or refer you to research
RESEARCH
KNOW THE RESEARCH IN PROGRESS ON YOUR RARE DISEASE PARTICIPATE IN RESEARCH ON YOUR DISEASE
TREATMENTS
WHAT ARE THE TREATMENTS FOR YOUR RARE DISEASE? PARTICIPATE IN THE EVALUATION OF A NEW MEDICATION
COMMUNITY
FIND A COMMUNITY TO SUPPORT YOU
RESOURCES
RESOURCES FOR YOU
You have just learned about everything that the RQMO does for people with rare diseases and their families.
Help us continue to help them.
