{"id":9875,"date":"2021-09-14T15:57:04","date_gmt":"2021-09-14T19:57:04","guid":{"rendered":"https:\/\/rqmo.org\/mission\/"},"modified":"2026-02-06T20:01:51","modified_gmt":"2026-02-07T01:01:51","slug":"mission","status":"publish","type":"page","link":"https:\/\/rqmo.org\/en\/mission\/","title":{"rendered":"Mission"},"content":{"rendered":"\t\t
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Mission<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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The Regroupement qu\u00e9b\u00e9cois des maladies orphelines (RQMO<\/strong>), whose founding was announced on International Rare Disease Day 2010, brings together rare disease associations, individuals with rare diseases, parents of affected children, caregivers and others interested in the cause of rare diseases.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Rare disease<\/h3><\/div>\t\t\t\t\t\t\t\t\t
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A rare disease is defined as a disease that affects fewer than one in 2,000 people in the population. A rare disease is very often considered to be an orphan disease.<\/p>\t\t\t\t<\/div>\n\t\t\t\t\t\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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RQMO's Mission<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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  1. Offer an information and support service for people suffering from a rare and orphan disease, for their families and for health professionals via itsiRARE Centre<\/a>.<\/li>
  2. Collect and share information on rare diseases and issues surrounding rare diseases.<\/li>
  3. Raise awareness among the public and the medical community about rare and orphan diseases.<\/li>
  4. Advance knowledge on various rare and orphan diseases by promoting exchanges between patients and researchers.<\/li><\/ol>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    ***********<\/p>

    The RQMO is an association registered with the Registraire des entreprises du Qu\u00e9bec (Quebec Enterprise Registrar) (#1166490178) and a charitable organization registered with the Canada Revenue Agency (#812655603 RR 0001). The RQMO issues tax receipts to its donors.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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    The founding of the RQMO<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    The Regroupement qu\u00e9b\u00e9cois des maladies orphelines was founded in 2010<\/strong> by Ms Gail Ouellette and representatives of the following associations: <\/p>

    • CORAHM (Corporation de recherche et d\u2019action sur les maladies h\u00e9r\u00e9ditaires- Saguenay-Lac-St-Jean)<\/li>
    • Association canadienne des ataxies familiales \u2013 Fondation Claude St-Jean (Ataxie Canada\/Ataxia Canada),<\/li>
    • Association qu\u00e9b\u00e9coise des personnes de petite taille (AQPPT)<\/li><\/ul>

      As well as by two people affected by Fabry disease and Morquio disease, respectively.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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      The RQMO is a member of the following organizations:<\/strong><\/p>

      • Canadian Organization for Rare Disorders (CORD)<\/li>
      • Coalition priorit\u00e9 cancer au Qu\u00e9bec<\/li><\/ul>

        The RQMO is a partner of the following organizations:<\/strong><\/p>

        • Montreal Clinical Research Institute (IRCM)<\/li>
        • Montr\u00e9al InVivo (Committee on Rare Diseases)<\/li>
        • CATALIS, Clinical Research Quebec<\/li>
        • Network to Advance Research on Rare Diseases in Quebec (RARE.Qc)<\/li>
        • Canadian Rare Disease Network<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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          Mission The Regroupement qu\u00e9b\u00e9cois des maladies orphelines (RQMO), whose founding was announced on International Rare Disease Day 2010, brings together rare disease associations, individuals with rare diseases, parents of affected children, caregivers and others interested in the cause of rare diseases. Rare disease A rare disease is defined as a disease that affects fewer than […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-9875","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/9875","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=9875"}],"version-history":[{"count":1,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/9875\/revisions"}],"predecessor-version":[{"id":9878,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/9875\/revisions\/9878"}],"wp:attachment":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=9875"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}