{"id":10207,"date":"2024-08-20T19:40:23","date_gmt":"2024-08-20T23:40:23","guid":{"rendered":"https:\/\/rqmo.org\/stiff-person-syndrome-community\/"},"modified":"2026-02-06T20:02:47","modified_gmt":"2026-02-07T01:02:47","slug":"stiff-person-syndrome-community","status":"publish","type":"page","link":"https:\/\/rqmo.org\/en\/stiff-person-syndrome-community\/","title":{"rendered":"Stiff Person Syndrome Community"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"10207\" class=\"elementor elementor-10207 elementor-8248\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1ef8e90 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1ef8e90\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5fff9e7\" data-id=\"5fff9e7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5c9d7c3 elementor-widget elementor-widget-heading\" data-id=\"5c9d7c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\"><a href=\"http:\/\/syndrome-personne-raide\">Stiff Person Syndrome Community<\/a><\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fdb8fe7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fdb8fe7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fb3258f\" data-id=\"fb3258f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b8d5ab0 elementor-widget elementor-widget-heading\" data-id=\"b8d5ab0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">This \"Rare Community\" is a\ngathering of individuals\naffected by\nstiff person syndrome.<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ab79388 elementor-widget elementor-widget-text-editor\" data-id=\"ab79388\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>We help them meet virtually to discuss their experiences and to define future projects. This is a web page dedicated to them to regroup relevant documents. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cee5e99 elementor-widget elementor-widget-text-editor\" data-id=\"cee5e99\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>To join this community, contact us. (Note that this is open to Quebec residents only)<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d4f7544 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d4f7544\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-652708e\" data-id=\"652708e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ea4b027 elementor-widget elementor-widget-heading\" data-id=\"ea4b027\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\"><h3 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"font-size: 1.77778rem;font-style: normal;text-transform: uppercase;letter-spacing: 2px\"><span style=\"font-size: 29px;font-style: inherit\">Documents<\/span><\/h3><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5bcb0ef elementor-widget elementor-widget-text-editor\" data-id=\"5bcb0ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/08\/Fiche-Maladie_PersonneRaide_RQMO_Sep2023.pdf\">RQMO resource sheet <\/a>(pdf)<\/li><li><a href=\"https:\/\/www.merckmanuals.com\/en-ca\/home\/brain-spinal-cord-and-nerve-disorders\/peripheral-nerve-and-related-disorders\/stiff-person-syndrome\">Stiff Person Syndrome <\/a>(The Merck Manual)<\/li><li><a href=\"https:\/\/www.orpha.net\/en\/disease\/detail\/3198\">Orphanet: Spectrum of stiff man syndrome<\/a><\/li><li><a href=\"https:\/\/rarediseases.org\/rare-diseases\/stiff-person-syndrome\/\">Stiff person syndrome<\/a> (NORD)<\/li><li><a href=\"https:\/\/www.orphananesthesia.eu\/en\/rare-diseases\/published-guidelines\/stiff-person-syndrome\/122-stiff-person-syndrome\/file.html\">Recommendations for anesthesia<\/a><\/li><li><a href=\"https:\/\/www.has-sante.fr\/jcms\/p_3374064\/fr\/greffe-de-cellules-souches-hematopoietiques-dans-les-maladies-auto-immunes\">Hematopoietic stem cell transplantation in autoimmune diseases<\/a> (Haute Autorit\u00e9 de la Sant\u00e9 \u2013 France)<\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC9274902\/\">Stiff Person Syndrome Spectrum Disorders; More Than Meets the Eye<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC7793517\/pdf\/cureus-0012-00000011995.pdf\">Stiff-Person Syndrome: A Treatment Update and New Directions<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC10783390\/pdf\/medi-103-e36883.pdf\">A case report of integrating Chinese and Western medicine A new era in the treatment of stiff person syndrome<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ab9a129 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ab9a129\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0c59ccf\" data-id=\"0c59ccf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d6f1a2e elementor-widget elementor-widget-heading\" data-id=\"d6f1a2e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\"><h3 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"font-size: 1.77778rem;font-style: normal;text-transform: uppercase;letter-spacing: 2px\"><span style=\"font-size: 29px;font-style: inherit\">Associations<\/span><\/h3><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bb3ed90 elementor-widget elementor-widget-text-editor\" data-id=\"bb3ed90\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/lizblows.wixsite.com\/spsuk\">Stiff Person UK<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/en\/patient-organisations?orphaCode=3198=Spectre%20du%20syndrome%20de%20l%27homme%20raide\">Others (Europe)<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ad9334f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ad9334f\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1b4b889\" data-id=\"1b4b889\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-984b485 elementor-widget elementor-widget-spacer\" data-id=\"984b485\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Stiff Person Syndrome Community This &#8220;Rare Community&#8221; is a gathering of individuals affected by stiff person syndrome. We help them meet virtually to discuss their experiences and to define future projects. This is a web page dedicated to them to regroup relevant documents. To join this community, contact us. (Note that this is open to [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-10207","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10207","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=10207"}],"version-history":[{"count":2,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10207\/revisions"}],"predecessor-version":[{"id":10222,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10207\/revisions\/10222"}],"wp:attachment":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=10207"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}