{"id":10174,"date":"2022-01-15T16:49:35","date_gmt":"2022-01-15T21:49:35","guid":{"rendered":"https:\/\/rqmo.org\/ehlers-danlos-syndromes-and-hypermobility\/"},"modified":"2026-10-08T10:02:39","modified_gmt":"2026-10-08T14:02:39","slug":"ehlers-danlos-syndromes-and-hypermobility","status":"publish","type":"page","link":"https:\/\/rqmo.org\/en\/ehlers-danlos-syndromes-and-hypermobility\/","title":{"rendered":"Ehlers-Danlos syndromes and hypermobility"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"10174\" class=\"elementor elementor-10174 elementor-2361\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1ef8e90 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1ef8e90\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5fff9e7\" data-id=\"5fff9e7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5c9d7c3 elementor-widget elementor-widget-heading\" data-id=\"5c9d7c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Ehlers-Danlos syndromes and hypermobility <\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fdb8fe7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fdb8fe7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-fb3258f\" data-id=\"fb3258f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8e3e004 elementor-widget elementor-widget-heading\" data-id=\"8e3e004\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Why a page on Ehlers-Danlos syndromes and hypermobility?<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ab79388 elementor-widget elementor-widget-text-editor\" data-id=\"ab79388\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The RQMO deals with all rare diseases. However, since the creation of our iRARE Centre, the condition for which we are most frequently contacted is Ehlers-Danlos syndrome (or hypermobility disorder). It is now estimated that &#8220;hypermobile type&#8221; Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) affect approximately one in 500 people in the population.<\/p><h6>\u00a0<\/h6><h6 style=\"text-align: center;\"><strong><span style=\"color: #ff6600;\">PLEASE NOTE<\/span>:<\/strong> As of September 2026, we can no longer provide individual assistance to people contacting us for information and resources regarding diagnosis and\/or care for Ehlers-Danlos syndrome in Quebec.<\/h6><h5 style=\"text-align: center;\"><span style=\"color: #ff6600;\"><strong>For help, consult the document indicated at the right&gt;&gt;<\/strong><\/span><\/h5>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-93df8e9\" data-id=\"93df8e9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bfaa0d4 elementor-widget elementor-widget-heading\" data-id=\"bfaa0d4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Are you looking to get a diagnosis for a possible Ehlers-Danlos syndrome or for resources to help you?<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-55b7665 elementor-widget elementor-widget-text-editor\" data-id=\"55b7665\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><em><strong>Consult the following guide:<\/strong><\/em><\/p><h5 style=\"text-align: center;\"><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/Guide-syndrome-Ehlers-Danlos-pour-patients-et-medecins_oct-2026.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"text-decoration: underline;\">&#8220;Vous croyez \u00eatre atteint.e du syndrome d&#8217;Ehlers-Danlos? Voici un guide pour vous et vos m\u00e9decins.&#8221; <\/span><\/a><\/h5><p style=\"text-align: center;\"><span style=\"text-decoration: underline;\">(English version available soon)<\/span><\/p><p>It contains:<\/p><ul><li>Information to help determine whether you might have hypermobile Ehlers-Danlos syndrome (the most common type), a hypermobility spectrum disorder, or a rare type of Ehlers-Danlos syndrome.<\/li><li>The diagnostic criteria for hypermobile type of EDS.<\/li><li><em><strong>Medical services in Quebec for the diagnosis and care of EDS.<\/strong><\/em><\/li><li>Reliable sources of information.<\/li><li>Information on genetic testing.<\/li><\/ul><h5 style=\"text-align: center;\"><strong><span style=\"color: #ff6600;\">Share this guide with your doctors!<\/span><\/strong><\/h5>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t<div class=\"elementor-element elementor-element-4ac41b4 e-flex e-con-boxed e-con e-parent\" data-id=\"4ac41b4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-92cb6ef elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"92cb6ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8533fdd elementor-widget elementor-widget-image\" data-id=\"8533fdd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/edscanada.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"300\" height=\"36\" src=\"https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/logo-EDS-Canada-Foundation-300x36.png\" class=\"attachment-medium size-medium wp-image-11492\" alt=\"\" srcset=\"https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/logo-EDS-Canada-Foundation-300x36.png 300w, https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/logo-EDS-Canada-Foundation-768x93.png 768w, https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/logo-EDS-Canada-Foundation.png 992w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cf4ba10 elementor-widget elementor-widget-text-editor\" data-id=\"cf4ba10\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"margin-left: 18.0pt;\"><strong>The only official association<\/strong> for the Ehlers-Danlos syndromes in Canada is the <strong><a href=\"https:\/\/edscanada.org\/\" target=\"_blank\" rel=\"noopener\">EDS Canada Foundatio<\/a>n<\/strong>. Visit their website for resources. If you speak English, you might benefit from their &#8220;<a href=\"https:\/\/edscanada.org\/resources\/book-a-wellness-session\/\" target=\"_blank\" rel=\"noopener\">Wellness Sessions<\/a>&#8221; and &#8220;<a href=\"https:\/\/edscanada.org\/resources\/virtual-support-groups\/\" target=\"_blank\" rel=\"noopener\">Virtual Support Groups<\/a>.&#8221;<\/p><p style=\"margin-left: 18.0pt;\">The Foundation is working to offer their services in French also.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-23f67a6 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"23f67a6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-67b4812 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"67b4812\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-feb144c\" data-id=\"feb144c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-b2b3214 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b2b3214\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-6d3c87d\" data-id=\"6d3c87d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f6bcaca elementor-widget elementor-widget-text-editor\" data-id=\"f6bcaca\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3>\u00a0<\/h3><h3 style=\"text-align: center;\"><span style=\"color: #5377e6;\">Joint hypermobility: what is it and is it serious?<\/span><\/h3><p style=\"text-align: center;\">Watch this video (French)<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-734745a\" data-id=\"734745a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-97cbbf3 elementor-widget elementor-widget-video\" data-id=\"97cbbf3\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/05\/Lhypermobilite-ou-lhyperlaxite.-Cest-quoi-et-est-ce-grave1.mp4\" controls=\"\" preload=\"metadata\" controlsList=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-e7953c1 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"e7953c1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t<div class=\"elementor-element elementor-element-6380cdd e-flex e-con-boxed e-con e-parent\" data-id=\"6380cdd\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-ee2b03e e-con-full e-flex e-con e-child\" data-id=\"ee2b03e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-066f8b4 elementor-widget elementor-widget-image\" data-id=\"066f8b4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/rqmo.org\/en\/a-real-disease\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"888\" height=\"495\" src=\"https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/Capture-ouverture-film-English.jpg\" class=\"attachment-large size-large wp-image-11538\" alt=\"\" srcset=\"https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/Capture-ouverture-film-English.jpg 888w, https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/Capture-ouverture-film-English-300x167.jpg 300w, https:\/\/rqmo.org\/wp-content\/uploads\/2026\/10\/Capture-ouverture-film-English-768x428.jpg 768w\" sizes=\"(max-width: 888px) 100vw, 888px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-60aeaa4 e-con-full e-flex e-con e-child\" data-id=\"60aeaa4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-86b75d9 elementor-widget elementor-widget-text-editor\" data-id=\"86b75d9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p> <\/p><p> <\/p><p style=\"text-align: center;\">The RQMO, in partnership with the EDS Canada Foundation, produced a documentary film about Ehlers-Danlos syndrome. It was released in May 2026 and is available on YouTube (French with English subtitles). <\/p><p style=\"text-align: center;\"><a href=\"https:\/\/rqmo.org\/en\/a-real-disease\/\" target=\"_blank\" rel=\"noopener\"><strong>See details on the film&#8217;s webpage.<\/strong><\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b4627b0 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b4627b0\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1bf03cf\" data-id=\"1bf03cf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8ee830c elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8ee830c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3a1f292 elementor-widget elementor-widget-heading\" data-id=\"3a1f292\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">Ehlers-Danlos syndrome genetic and molecular research project<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e9522f8 elementor-widget elementor-widget-text-editor\" data-id=\"e9522f8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The <strong><a href=\"https:\/\/www.mcgill.ca\/hypermobile-eds-omics-research\/\" target=\"_blank\" rel=\"noopener\">hEDS*omics program<\/a><\/strong> is a large-scale multicenter research initiative in Quebec focusing on hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HDS).<\/p><p>The program&#8217;s mission is to transform the understanding and management of SEDh and DSH by integrating molecular data with clinical, lifestyle and environmental information.<\/p><p>This project is based at the <strong>McGill Genome Centre of McGill University&#8217;s Department of Human Genetics.<\/strong> RQMO is collaborating on this research project. <\/p><p>For the time being, patients are being recruited through physicians at university centers (MUHC, CHUM, CHU Ste-Justine and CHUL). <\/p><p>For more information: <a href=\"https:\/\/www.mcgill.ca\/hypermobile-eds-omics-research\/\" target=\"_blank\" rel=\"noopener\">https:\/\/www.mcgill.ca\/hypermobile-eds-omics-research\/<\/a> <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ffc4e66 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"ffc4e66\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4c6a85e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4c6a85e\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-bff754d\" data-id=\"bff754d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3a5c1cd elementor-widget elementor-widget-heading\" data-id=\"3a5c1cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-medium\">Our steps for the recognition of EDS in Quebec<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f7009ce elementor-widget elementor-widget-text-editor\" data-id=\"f7009ce\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p> The RQMO has made several representations to various Ministers of Health to plead for recognition of the particular difficulties experienced by people with EDS and their families (lack of diagnosis and care). We have also provided statistics which demonstrate that hypermobile type EDS and hypermobility spectrum disorders are more common than estimated and therefore warrant special attention. <\/p><p>We are continuing our efforts, just as we do for all rare diseases. We are also collaborating with the EDS Canada Foundation to bring about change across Canada. <\/p><p style=\"text-align: center;\"> <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-2852115\" data-id=\"2852115\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-445bb27 elementor-widget elementor-widget-text-editor\" data-id=\"445bb27\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p> <\/p><p><a href=\"https:\/\/www.newswire.ca\/fr\/news-releases\/le-syndrome-d-ehlers-danlos-il-faut-sensibiliser-les-professionnels-de-la-sante-au-sujet-de-cette-maladie-882902888.html\" target=\"_blank\" rel=\"noopener\"><strong>Press release \u2013 october 2022<\/strong>: Le syndrome d\u2019Ehlers-Danlos : il faut sensibiliser les professionnels de la sant\u00e9 au sujet de cette maladie <\/a><\/p><p>A <strong><a href=\"https:\/\/www.assnat.qc.ca\/fr\/exprimez-votre-opinion\/petition\/Petition-10111\/index.html?fbclid=IwAR3SKFWcKyZE_rVt7-mMCNNCvjMS4pFSSWraywG_klIR6_WOBIKM5hmNpu4\" target=\"_blank\" rel=\"noopener\">petition concerning EDS<\/a><\/strong> was published on the website of the Quebec National Assembly. The filing of this petition by the MNA, Mr Andr\u00e9 Fortin, was made on May 23, 2023.  <\/p><p><a href=\"https:\/\/www.facebook.com\/RQMOrphelines\/videos\/638040031673690\" target=\"_blank\" rel=\"noopener\">Watch the video <\/a> (Facebook)<\/p><p style=\"text-align: center;\"><strong><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/10-Reponse-gvt-petition-depute-Pontiac-syndrome-Ehlers-Danlos-002.pdf\" target=\"_blank\" rel=\"noopener\"> Response to the petition<\/a> from the Minister of Health and Social Services, Mr. Christian Dub\u00e9.<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-668653b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"668653b\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8ceb7e0\" data-id=\"8ceb7e0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-21d7cb9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"21d7cb9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-6b045f3\" data-id=\"6b045f3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8be12c4 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8be12c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-7a0f8d3\" data-id=\"7a0f8d3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-48b0537 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"48b0537\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<a class=\"elementor-icon\" href=\"#top\">\n\t\t\t<i aria-hidden=\"true\" class=\"far fa-arrow-alt-circle-up\"><\/i>\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Ehlers-Danlos syndromes and hypermobility Why a page on Ehlers-Danlos syndromes and hypermobility? The RQMO deals with all rare diseases. However, since the creation of our iRARE Centre, the condition for which we are most frequently contacted is Ehlers-Danlos syndrome (or hypermobility disorder). It is now estimated that &#8220;hypermobile type&#8221; Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-10174","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10174","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=10174"}],"version-history":[{"count":19,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10174\/revisions"}],"predecessor-version":[{"id":11551,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10174\/revisions\/11551"}],"wp:attachment":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=10174"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}