{"id":10174,"date":"2022-01-15T16:49:35","date_gmt":"2022-01-15T21:49:35","guid":{"rendered":"https:\/\/rqmo.org\/ehlers-danlos-syndromes-and-hypermobility\/"},"modified":"2026-02-06T20:02:36","modified_gmt":"2026-02-07T01:02:36","slug":"ehlers-danlos-syndromes-and-hypermobility","status":"publish","type":"page","link":"https:\/\/rqmo.org\/en\/ehlers-danlos-syndromes-and-hypermobility\/","title":{"rendered":"Ehlers-Danlos syndromes and hypermobility"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"10174\" class=\"elementor elementor-10174 elementor-2361\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1ef8e90 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1ef8e90\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5fff9e7\" data-id=\"5fff9e7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5c9d7c3 elementor-widget elementor-widget-heading\" data-id=\"5c9d7c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Ehlers-Danlos syndromes and hypermobility <\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fdb8fe7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fdb8fe7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-fb3258f\" data-id=\"fb3258f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8e3e004 elementor-widget elementor-widget-heading\" data-id=\"8e3e004\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">Why a page on Ehlers-Danlos syndromes and hypermobility?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ab79388 elementor-widget elementor-widget-text-editor\" data-id=\"ab79388\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The RQMO deals with all rare diseases. However, since the inception of our iRARE Centre, the disease for which we have been contacted the most is Ehlers-Danlos syndrome (or a related hereditary connective tissue disorder). Joint hypermobility disorders and one type of Ehlers-Danlos syndrome (hypermobile type EDS) are now recognized to be more common in the population than previously believed.<\/p><p>Ehlers-Danlos syndrome (EDS) is not well known, underdiagnosed or misdiagnosed. It therefore often happens that affected people self-diagnose via the web or by obtaining information from other people or patient associations. Or, a doctor or other health care professional suspects Ehlers-Danlos syndrome (or another connective tissue disease), but the diagnosis is not confirmed.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-93df8e9\" data-id=\"93df8e9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-55b7665 elementor-widget elementor-widget-text-editor\" data-id=\"55b7665\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"text-align: center;\"><span style=\"color: #000000;\"><strong>YOU ARE SEEKING A DIAGNOSIS OF POSSIBLE EHLERS-DANLOS SYNDROME (SED)<\/strong><\/span><\/p><p><em><strong>If you think you have SED:  <\/strong><\/em><\/p><ul><li><em><strong>Consult the following document to find a service to which your doctor can refer you:<a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2025\/03\/Information_Ehlers-Danlos_diagnostic_prise-en-charge_RQMO_mars-2025.pdf\" target=\"_blank\" rel=\"noopener\">&#8220;Diagnosis and management: resources in Quebec<\/a>&#8220;.<\/strong><\/em><\/li><li>The most common type of EDS is the hypermobile type (hEDS). Check the diagnostic criteria with this <a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2023\/08\/Questionnaire-Criteres-diagnostiques_SED-type-hypermobile_VGO.pdf\" target=\"_blank\" rel=\"noopener\"><strong>questionnaire<\/strong><\/a>. You can also forward this questionnaire to your doctor.  <\/li><li>To assess your hypermobility: <a href=\"https:\/\/www.youtube.com\/watch?v=Inm1aJcxEe4\" target=\"_blank\" rel=\"noopener\">the Beighton score.<\/a><\/li><li><em><strong>If you don&#8217;t have a doctor, if you&#8217;re having trouble getting a referral for diagnosis or finding <\/strong><\/em><em><strong>medical resources to treat you, contact us.<\/strong><\/em><em><strong><a href=\"https:\/\/rqmo.org\/en\/contact\/\" target=\"_blank\" rel=\"noopener\">please contact us<\/a>.<\/strong><\/em><\/li><li>If you have any questions about genetic testing for SED, see below.<\/li><\/ul><p style=\"text-align: center;\">To connect with other people in Quebec: <a href=\"https:\/\/www.facebook.com\/constellationthtc\" target=\"_blank\" rel=\"noopener\">private Facebook page. <\/a> <\/p><p style=\"text-align: center;\">If you reside<span style=\"text-decoration: underline;\"><strong> outside of Quebec<\/strong><\/span>, contact the <a href=\"https:\/\/theilcfoundation.org\/\" target=\"_blank\" rel=\"noopener\">EDS Canada Foundation.<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3f4c524 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3f4c524\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8c7cb9b\" data-id=\"8c7cb9b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-68254a0 elementor-widget elementor-widget-heading\" data-id=\"68254a0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">These documents can guide you and your doctors:<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cb3b50d elementor-widget elementor-widget-text-editor\" data-id=\"cb3b50d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2025\/03\/Information_Ehlers-Danlos_diagnostic_prise-en-charge_RQMO_mars-2025.pdf\" target=\"_blank\" rel=\"noopener\"><strong>Diagnosis and management of EDS: resources in Quebec<\/strong><\/a><\/li><li>Being the most frequent of the 13 types of EDS, we indicate here the diagnostic criteria for hypermobile EDS. <a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2023\/08\/Questionnaire-Criteres-diagnostiques_SED-type-hypermobile_VGO.pdf\" target=\"_blank\" rel=\"noopener\"><strong>diagnostic criteria for hypermobile EDS<\/strong><\/a> (hEDS)<\/li><li><a href=\"https:\/\/www.cheo.on.ca\/en\/resources-and-support\/resources\/P6135F.pdf\" target=\"_blank\" rel=\"noopener\">Joint hypermobility <\/a> (CHEO document, Ottawa; definition and advice)<\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=Inm1aJcxEe4\" target=\"_blank\" rel=\"noopener\">Hypermobility assessment (Beighton score)<\/a><\/li><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/06\/Criteres-SED-vasculaire.pdf\" target=\"_blank\" rel=\"noopener\"> Criteria for EDS vascular type<\/a> (which can have serious consequences)<\/li><li>If your symptoms are not consistent with hEDS or another type of EDS, you may have <strong>&#8220;hypermobility spectrum disorder&#8221;<\/strong> (HMSD). See these documents on HSD:<ul><li><a href=\"https:\/\/www.ehlers-danlos.com\/what-is-hsd\/\" target=\"_blank\" rel=\"noopener\">Ehlers-Danlos Society<\/a> (English)<\/li><li><a href=\"https:\/\/unsed.org\/content\/27-desordres-du-spectre-de-l-hypermobilite-articulaire-dsh-\" target=\"_blank\" rel=\"noopener\"> In French<\/a> (from the UNSED association)<\/li><\/ul><\/li><\/ul><p><span style=\"color: #d55e27;\"><strong>Genetic tests for EDS:<\/strong><\/span> usually, the medical geneticists are the ones who will judge if genetic testing should be done for suspected EDS or other hereditary connective tissue disorders. Note that there is no genetic test yet for the most common type, hypermobile type EDS. <strong>If you are considering paying out-of-pocket for genetic testing for EDS, contact us.<\/strong> A genetic counselor can guide you on this. Laboratories that advertise on the Internet and do not require a doctor&#8217;s prescription are not true genetic diagnostic laboratories. <strong>Contact us<\/strong> so that our genetic counsellor can guide you and <strong>help you pay less<\/strong> than in a private clinic.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-67b4812 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"67b4812\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-feb144c\" data-id=\"feb144c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-b2b3214 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b2b3214\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-6d3c87d\" data-id=\"6d3c87d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f6bcaca elementor-widget elementor-widget-text-editor\" data-id=\"f6bcaca\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3> <\/h3><h3 style=\"text-align: center;\"><span style=\"color: #5377e6;\">Joint hypermobility: what is it and is it serious?<\/span><\/h3><p style=\"text-align: center;\">Watch this video<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-734745a\" data-id=\"734745a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-97cbbf3 elementor-widget elementor-widget-video\" data-id=\"97cbbf3\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/05\/Lhypermobilite-ou-lhyperlaxite.-Cest-quoi-et-est-ce-grave1.mp4\" controls=\"\" preload=\"metadata\" controlsList=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f3b0187 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f3b0187\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3927315\" data-id=\"3927315\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7ac509c elementor-widget elementor-widget-text-editor\" data-id=\"7ac509c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p> <\/p><ul><li><strong>To exchange with other people in Quebec: <a href=\"https:\/\/www.facebook.com\/constellationthtc\" target=\"_blank\" rel=\"noopener\">private Facebook page. <\/a><\/strong><a href=\"https:\/\/www.facebook.com\/constellationthtc\" target=\"_blank\" rel=\"noopener\"><span style=\"color: #000000;\">E<\/span><\/a>mail: constellation.info@gmail.com. <\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-56e7ff9 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"56e7ff9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-71f0d08 elementor-widget elementor-widget-heading\" data-id=\"71f0d08\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">Documents and resources<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-392668b elementor-widget elementor-widget-text-editor\" data-id=\"392668b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/www.cheo.on.ca\/en\/resources-and-support\/resources\/P6135F.pdf\" target=\"_blank\" rel=\"noopener\">Joint hypermobility <\/a> (CHEO document, Ottawa; definition and advice)<\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=Inm1aJcxEe4\" target=\"_blank\" rel=\"noopener\">Hypermobility assessment (Beighton score)<\/a><\/li><li>Articles from the International EDS Consortium (new 2017 criteria):<ul><li><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajmg.c.31552\" target=\"_blank\" rel=\"noopener\">Classification and diagnostic criteria for the 13 subtypes of EDS <\/a><\/li><li><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajmg.c.31538\" target=\"_blank\" rel=\"noopener\">EDS hypermobile type<\/a><\/li><li><a class=\"broken_link\" href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajmg.c.31539\" target=\"_blank\" rel=\"noopener\">Hypermobility Spectrum Disorders<\/a><\/li><\/ul><\/li><li>Presentations by three doctors from <a href=\"https:\/\/gersed.org\/\" target=\"_blank\" rel=\"noopener\">GERSED<\/a> (Groupe d&#8217;\u00e9tude et de recherche sur le syndrome d&#8217;Ehlers-Danlos) invited by the RQMO to Quebec in 2022:<ul><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2023\/08\/traitement-sedenligne-Dr-Michel-Horgue.pdf\" target=\"_blank\" rel=\"noopener\">Symptomatic and preventive treatments for hEDS<\/a><\/li><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2023\/08\/Proprioception_SEDenligne2021_V6_Dr-Miche-Horgue.pdf\" target=\"_blank\" rel=\"noopener\">Proprioception in EDS<\/a><\/li><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2023\/08\/SAMA_et-SED_Dr-Grossin_GERSED.pdf\" target=\"_blank\" rel=\"noopener\">Mast cell activation syndrome (MACS) in EDS<\/a><\/li><\/ul><\/li><li>GERSED <a href=\"https:\/\/gersed.org\/sedenligne\/\" target=\"_blank\" rel=\"noopener\">&#8220;SEDenligne&#8221;<\/a> training videos<\/li><li><a href=\"https:\/\/www.ehlers-danlos.com\/past-events\/\" target=\"_blank\" rel=\"noopener\">EDS Society <\/a> (international association): numerous documents and recorded conferences<ul><li>EDS Society lectures (<a href=\"https:\/\/www.youtube.com\/playlist?list=PLJ8LTDV_7Qkvy89zUrzcS5bnTO5dIJKFn\" target=\"_blank\" rel=\"noopener\">translated into French<\/a>) presented by experts on a variety of EDS-related topics<\/li><\/ul><\/li><li><a href=\"https:\/\/sedinfrance.org\/\" target=\"_blank\" rel=\"noopener\">SED&#8217;in France<\/a> (Patients\u2019 association)<\/li><li>Recorded lectures from the<a href=\"https:\/\/www.theilcfoundation.org\/category\/past-conferences\/\" target=\"_blank\" rel=\"noopener\">EDS Canada Foundation <\/a>(Canada)<\/li><li><a href=\"https:\/\/www.chronicpainpartners.com\/webinars\/\" target=\"_blank\" rel=\"noopener\">EDS Awareness<\/a> webinars<\/li><li>Free electronic book (ebook) to download: <a href=\"https:\/\/www.iospress.nl\/book\/ehlers-danlos-syndrome-a-multidisciplinary-approach\/\" target=\"_blank\" rel=\"noopener\">Ehlers-Danlos Syndrome: A Multidisciplinary Approach<\/a><\/li><li><strong>Movement therapy to help with your hypermobility <\/strong>(Jeannie Di Bon)<ul><li><a href=\"https:\/\/jeanniedibon.com\/\" target=\"_blank\" rel=\"noopener\">Website<\/a><\/li><li><a href=\"https:\/\/www.youtube.com\/channel\/UCh3dgBm_L5pwaeBQI-Q7yVw\" target=\"_blank\" rel=\"noopener\">Youtube videos<\/a><\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=Hp-ezS-aqGs&amp;list=PLJ8LTDV_7Qkvy89zUrzcS5bnTO5dIJKFn&amp;index=2\" target=\"_blank\" rel=\"noopener\">Conferences translated into French<\/a><\/li><\/ul><\/li><li><a href=\"https:\/\/www.amazon.ca\/Disjointed-Navigating-hypermobile-Ehlers-Danlos-Hypermobility\/dp\/1734794909\" target=\"_blank\" rel=\"noopener\">Disjointed. Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders<\/a>, book, by various EDS experts.<\/li><li><a href=\"https:\/\/www.amazon.ca\/-\/fr\/St%C3%A9phane-DAENS\/dp\/B088BG38XD\" target=\"_blank\" rel=\"noopener\"> Transforming Ehlers-Danlos Syndrome. A Global Vision of the Disease,<\/a>book, Dr St\u00e9phane Daens<\/li><li><a href=\"https:\/\/www.editions-harmattan.fr\/livre-ehlers_danlos_la_maladie_oubliee_par_la_medecine_claude_hamonet-9782343152455-60535.html\" target=\"_blank\" rel=\"noopener\"> Ehlers-Danlos, La maladie <\/a><a href=\"http:\/\/livre%20du%20pr%20claude%20hamonet:%20Ehlers-Danlos,%20La%20maladie%20oubli%C3%A9e%20par%20la%20m%C3%A9decine\/\" target=\"_blank\" rel=\"noopener\">oubli\u00e9e par la m\u00e9decine<\/a>, book, Professor Claude Hamonet<\/li><li>RQMO webinars on Ehlers-Danlos syndromes (2020):<ul><li><p><a href=\"https:\/\/www.youtube.com\/watch?v=rtvbRQjirLc\" target=\"_blank\" rel=\"noopener\">Aspects g\u00e9n\u00e9tiques des syndromes Ehlers-Danlos<\/a><\/p><\/li><li><p><a href=\"https:\/\/www.youtube.com\/watch?v=p7QEcjQosTQ\" target=\"_blank\" rel=\"noopener\">Aspects mol\u00e9culaires et pathophysiologiques des syndromes Ehlers-Danlos<\/a><\/p><\/li><li><p><a href=\"https:\/\/www.youtube.com\/watch?v=ATJyiTeCVyA\" target=\"_blank\" rel=\"noopener\"><span class=\"JsGRdQ\">Ehlers-Danlos syndrome \u2013 <\/span><span class=\"JsGRdQ\">Bone manifestations <\/span> <\/a><\/p><\/li><li><a href=\"https:\/\/youtu.be\/J_3pDW1ROis\" target=\"_blank\" rel=\"noopener\"> \u201cNeeds and Priorities\u201d Survey of People with EDS in Canada<\/a> (2017; in English)<\/li><\/ul><\/li><\/ul><p><strong>For doctors and healthcare professionals: <\/strong>follow the <a href=\"https:\/\/www.ehlers-danlos.com\/echo\/\" target=\"_blank\" rel=\"noopener\">EDS Society&#8217;s &#8220;ECHO&#8221; training courses<\/a> to learn more about EDS and better help your patients.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-28a73c2 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"28a73c2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-695f4a1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"695f4a1\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-3b5939f\" data-id=\"3b5939f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-874f17c elementor-widget elementor-widget-image\" data-id=\"874f17c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"768\" height=\"614\" src=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society-768x614.png\" class=\"attachment-medium_large size-medium_large wp-image-5962\" alt=\"\" srcset=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society-768x614.png 768w, https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society-300x240.png 300w, https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society-1024x819.png 1024w, https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society-750x600.png 750w, https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society-1536x1229.png 1536w, https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/Mesure-de-lhypermobilite-Source-EDS-Society.png 2000w\" sizes=\"(max-width: 768px) 100vw, 768px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-77a2b65\" data-id=\"77a2b65\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6b56bac elementor-widget elementor-widget-text-editor\" data-id=\"6b56bac\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Joint hypermobility <\/strong> means that a person&#8217;s joints have a greater range of motion than expected or normal. It can cause subluxations or dislocations of various joints, as well as chronic pain.<\/p><p>For the diagnosis of EDS, this hypermobility is measured by the \u201cBeighton score\u201d. Note to health professionals, you need to know how to measure it and you need to take into account the age and sex of the individual and ask them about hypermobility in their past (e.g. childhood or young adulthood). See 2017 criteria and how to measure Beighton score. Many clinicians also check other joints than those suggested by the Beighton score. Check out:<\/p><ul><li><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajmg.c.31552\" target=\"_blank\" rel=\"noopener\">Classification and diagnostic criteria for the 13 subtypes of EDS <\/a><\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=Inm1aJcxEe4\" target=\"_blank\" rel=\"noopener\">Assessment of hyperlaxity (Beighton score)<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b4627b0 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b4627b0\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1bf03cf\" data-id=\"1bf03cf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8ee830c elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8ee830c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3a1f292 elementor-widget elementor-widget-heading\" data-id=\"3a1f292\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">Research project on Ehlers-Danlos syndromes (EDS) - Recruitment planned for fall 2024<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e9522f8 elementor-widget elementor-widget-text-editor\" data-id=\"e9522f8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>For anyone who thinks they may be affected or have a diagnosis of Ehlers-Danlos or a hypermobility spectrum disorder and who lives in the province of Quebec.<\/strong><\/p><p>The RQMO is collaborating with McGill University and the company Medeloop to carry out a large study on Ehlers-Danlos syndromes (EDS) in Quebec to better characterize their clinical and genetic aspects. This study will include all types of EDS and hypermobility spectrum disorders. People who do not yet have an official diagnosis of EDS will also be able to participate. <\/p><p><em><strong>To find out your interest in this research project, please complete the following short survey: <a href=\"https:\/\/fr.surveymonkey.com\/r\/2H8YXN8\">Ehlers-Danlos Survey (surveymonkey.com)<\/a><\/strong><\/em><\/p><p>Please contact us with your details if you are interested in receiving information about this study (by writing to info@rqmo.org).<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-717b58b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"717b58b\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8478ecb\" data-id=\"8478ecb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-263b33e elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"263b33e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cae802b elementor-widget elementor-widget-heading\" data-id=\"cae802b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">EDS Research<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-63c144a elementor-widget elementor-widget-text-editor\" data-id=\"63c144a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li>Ongoing studies and clinical trials: <a href=\"https:\/\/clinicaltrials.gov\/search?cond=Ehlers-Danlos%20Syndrome&amp;aggFilters=status:not%20rec\" target=\"_blank\" rel=\"noopener\">ClinicalTrials.gov<\/a><\/li><li>Consult <a href=\"https:\/\/www.orpha.net\/fr\" target=\"_blank\" rel=\"noopener\">Orphanet<\/a>for research projects and clinical trials on EDS.<\/li><li>Projects funded by <a href=\"https:\/\/gersed.org\/actualites\/resultats-bourse-de-recherche-2023\/\" target=\"_blank\" rel=\"noopener\">GERSED<\/a> (2023)<\/li><li><a href=\"https:\/\/www.ehlers-danlos.com\/research\/funded-research\/\" target=\"_blank\" rel=\"noopener\">EDS Society &#8211; Research<\/a><\/li><li><a style=\"background-color: #ffffff;\" href=\"https:\/\/www.ehlers-danlos.com\/eds-global-registry\/\" target=\"_blank\" rel=\"noopener\">Global Registry<\/a> (patient registry) of the International Consortium on EDS<\/li><li><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/?term=ehlers-danlos+syndrome&amp;filter=hum_ani.humans&amp;sort=date\" target=\"_blank\" rel=\"noopener\">Scientific articles <\/a> published on the SED <\/li><li>Research projects initiated by the RQMO:<ul><li>Survey on the<a href=\"https:\/\/www.youtube.com\/watch?v=J_3pDW1ROis\" target=\"_blank\" rel=\"noopener\">needs and priorities of people affected by EDS and parents of affected children<\/a> (in collaboration with <em>EDS Canada Foundation<\/em>).<\/li><li>Resarch done in Quebec to identify the genetic causes of EDS hypermobile type. In collaboration with researchers at Universit\u00e9 de Montr\u00e9al and clinicians from the CHUM and MUHC. Funded by the Fondation Pierre Lavoie. Conclusion: no significant variants found.<del><\/del><\/li><\/ul><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bf7bbdc elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"bf7bbdc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4c6a85e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4c6a85e\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-bff754d\" data-id=\"bff754d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3a5c1cd elementor-widget elementor-widget-heading\" data-id=\"3a5c1cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">Our steps for the recognition of EDS in Quebec<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f7009ce elementor-widget elementor-widget-text-editor\" data-id=\"f7009ce\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p> <\/p><p>The RQMO has made several representations to various Ministers of Health to plead for recognition of the particular difficulties experienced by people with EDS and their families (lack of diagnosis and care). We have also provided statistics which demonstrate that hypermobile type EDS and hypermobility spectrum disorders are more common than estimated and therefore warrant special attention.<\/p><p> <\/p><p style=\"text-align: center;\"><a href=\"https:\/\/www.newswire.ca\/fr\/news-releases\/le-syndrome-d-ehlers-danlos-il-faut-sensibiliser-les-professionnels-de-la-sante-au-sujet-de-cette-maladie-882902888.html\" target=\"_blank\" rel=\"noopener\"><strong> RQMO press release \u2013 October 2022: <\/strong> Ehlers-Danlos syndrome: we must raise awareness among health professionals about this disease (newswire.ca) <\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-2852115\" data-id=\"2852115\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d94575e elementor-widget elementor-widget-spacer\" data-id=\"d94575e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-445bb27 elementor-widget elementor-widget-text-editor\" data-id=\"445bb27\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>A <strong><a href=\"https:\/\/www.assnat.qc.ca\/fr\/exprimez-votre-opinion\/petition\/Petition-10111\/index.html?fbclid=IwAR3SKFWcKyZE_rVt7-mMCNNCvjMS4pFSSWraywG_klIR6_WOBIKM5hmNpu4\" target=\"_blank\" rel=\"noopener\">petition concerning EDS<\/a><\/strong> was published on the website of the Quebec National Assembly. The filing of this petition by the MNA, Mr Andr\u00e9 Fortin, was made on May 23, 2023. <\/p><p><a href=\"https:\/\/www.facebook.com\/RQMOrphelines\/videos\/638040031673690\" target=\"_blank\" rel=\"noopener\">Watch the video <\/a> (Facebook)<\/p><p style=\"text-align: center;\"><strong><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/01\/10-Reponse-gvt-petition-depute-Pontiac-syndrome-Ehlers-Danlos-002.pdf\" target=\"_blank\" rel=\"noopener\"> Response to the petition<\/a> from the Minister of Health and Social Services, Mr. Christian Dub\u00e9.<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-668653b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"668653b\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8ceb7e0\" data-id=\"8ceb7e0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-21d7cb9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"21d7cb9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-6b045f3\" data-id=\"6b045f3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8be12c4 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8be12c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-7a0f8d3\" data-id=\"7a0f8d3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-48b0537 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"48b0537\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<a class=\"elementor-icon\" href=\"#top\">\n\t\t\t<i aria-hidden=\"true\" class=\"far fa-arrow-alt-circle-up\"><\/i>\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Ehlers-Danlos syndromes and hypermobility Why a page on Ehlers-Danlos syndromes and hypermobility? The RQMO deals with all rare diseases. However, since the inception of our iRARE Centre, the disease for which we have been contacted the most is Ehlers-Danlos syndrome (or a related hereditary connective tissue disorder). Joint hypermobility disorders and one type of Ehlers-Danlos [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-10174","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10174","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=10174"}],"version-history":[{"count":1,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10174\/revisions"}],"predecessor-version":[{"id":10175,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10174\/revisions\/10175"}],"wp:attachment":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=10174"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}