{"id":10109,"date":"2024-08-19T22:37:54","date_gmt":"2024-08-20T02:37:54","guid":{"rendered":"https:\/\/rqmo.org\/smith-magenis-syndrome-community\/"},"modified":"2026-02-06T20:02:30","modified_gmt":"2026-02-07T01:02:30","slug":"smith-magenis-syndrome-community","status":"publish","type":"page","link":"https:\/\/rqmo.org\/en\/smith-magenis-syndrome-community\/","title":{"rendered":"Smith-Magenis Syndrome Community"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"10109\" class=\"elementor elementor-10109 elementor-8220\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1ef8e90 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1ef8e90\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5fff9e7\" data-id=\"5fff9e7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5c9d7c3 elementor-widget elementor-widget-heading\" data-id=\"5c9d7c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\"><a href=\"http:\/\/syndrome-personne-raide\">Smith-Magenis Syndrome Community<\/a><\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fdb8fe7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fdb8fe7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fb3258f\" data-id=\"fb3258f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b8d5ab0 elementor-widget elementor-widget-heading\" data-id=\"b8d5ab0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">This \"Rare Community\" is a\ngathering of individuals\naffected by\nSmith-Magenis syndrome.  <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ab79388 elementor-widget elementor-widget-text-editor\" data-id=\"ab79388\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>We help them meet virtually to discuss their experiences and to define future projects. This is a web page dedicated to them to regroup relevant documents. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cee5e99 elementor-widget elementor-widget-text-editor\" data-id=\"cee5e99\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>To join this community, contact us. (Note that this is open to Quebec residents only)<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d4f7544 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d4f7544\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-652708e\" data-id=\"652708e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ea4b027 elementor-widget elementor-widget-heading\" data-id=\"ea4b027\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\"><h3 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"font-size: 1.77778rem;font-style: normal;text-transform: uppercase;letter-spacing: 2px\"><span style=\"font-size: 29px;font-style: inherit\">Documents<\/span><\/h3><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-574cbc5 elementor-widget elementor-widget-text-editor\" data-id=\"574cbc5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/rqmo.org\/wp-content\/uploads\/2024\/08\/Fiche-Maladie_SyndromeSmithMagenis_RQMO_Juin-2024.pdf\">RQMO health form<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/pdfs\/data\/patho\/Pub\/fr\/Smith-Magenis-FRfrPub387.pdf\">Smith-Magenis syndrome<\/a> (Consumer Encyclopedia &#8211; Orphanet)<\/li><li><a href=\"https:\/\/www.orpha.net\/fr\/disease\/detail\/819\">Orphanet<\/a><\/li><li><a href=\"https:\/\/www.has-sante.fr\/jcms\/p_3284453\/fr\/syndrome-de-smith-magenis\">Recommendations for clinical practice<\/a> (Haute Autorit\u00e9 de sant\u00e9 &#8211; France)<\/li><li><a href=\"https:\/\/www.has-sante.fr\/jcms\/p_3284453\/fr\/syndrome-de-smith-magenis\">Emergency care<\/a> (Orphanet)<\/li><li><a href=\"https:\/\/www.orpha.net\/pdfs\/data\/patho\/Han\/fr\/Handicap_SyndromeSmithMagenis--FrfrPub387v01.pdf\">Orphanet Encyclopedia of Disability<\/a><\/li><li><a href=\"https:\/\/smith-magenis.org\/what-is-sms\/living-with-sms\/\">Living with SMS<\/a><\/li><li><a href=\"https:\/\/smith-magenis.org\/wp-content\/uploads\/SMS-booklet-2017.pdf\">Smith-Magenis Syndrome Information and Advice for Caregivers &amp; Profressionals<\/a><\/li><li><a href=\"https:\/\/www.prisms.org\/wp-content\/uploads\/pdf\/mmg\/PRISMS_Medical_Management_Guidelines2018.pdf\">Medical Management Guidelines for an Individual Diagnosed With SMS<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC8872351\/\">Smith-Magenis Syndrome-Clinical Review, Biological Background and Related Disorders<\/a><\/li><li><a href=\"https:\/\/www.prisms.org\/about-sms\/living-with-sms\/behavior\/\">Behavior SMS-PRISM website<\/a><\/li><li><a href=\"https:\/\/smith-magenis.org\/caregivers-experience-of-sleep-management-in-sms-research-study\/\">Caregivers&#8217; experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases<\/a><\/li><li><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1002\/ajmg.b.32956\">Psychiatric and neurological manifestations in adults with Smith-Magenis syndrome: A scoping review<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ab9a129 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ab9a129\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0c59ccf\" data-id=\"0c59ccf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d6f1a2e elementor-widget elementor-widget-heading\" data-id=\"d6f1a2e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\">WEBINARS<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-92b7482 elementor-widget elementor-widget-text-editor\" data-id=\"92b7482\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/www.youtube.com\/watch?v=z9_BCJNsCpA\" target=\"_blank\" rel=\"noopener\">Genetics of Smith-Magenis syndrome and state of research<\/a> &#8211; December 11, 2024<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-9b592a0 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"9b592a0\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ed52aea\" data-id=\"ed52aea\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-55b05f0 elementor-widget elementor-widget-heading\" data-id=\"55b05f0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-large\"><h3 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"font-size: 1.77778rem;font-style: normal;text-transform: uppercase;letter-spacing: 2px\"><span style=\"font-size: 29px;font-style: inherit\">Associations<\/span><\/h3><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3a09577 elementor-widget elementor-widget-text-editor\" data-id=\"3a09577\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li><a href=\"https:\/\/www.smithmagenis17.org\/\">Smith-Magenis Association &#8211; France<\/a><\/li><li><a href=\"https:\/\/www.prisms.org\/\">Parents and Researchers Interested in Smith-Magenis Syndrome<\/a> (PRISMS)<\/li><li><a href=\"https:\/\/smsresearchfoundation.org\/\" target=\"_blank\" rel=\"noopener\">SMS Research Foundation<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/fr\/patient-organisations?orphaCode=819&amp;diseaseName=Syndrome%20de%20Smith-Magenis\">Other &#8211; Europe<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ad9334f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ad9334f\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1b4b889\" data-id=\"1b4b889\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-984b485 elementor-widget elementor-widget-spacer\" data-id=\"984b485\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Smith-Magenis Syndrome Community This &#8220;Rare Community&#8221; is a gathering of individuals affected by Smith-Magenis syndrome. We help them meet virtually to discuss their experiences and to define future projects. This is a web page dedicated to them to regroup relevant documents. To join this community, contact us. (Note that this is open to Quebec residents [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-10109","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10109","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=10109"}],"version-history":[{"count":2,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10109\/revisions"}],"predecessor-version":[{"id":10115,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10109\/revisions\/10115"}],"wp:attachment":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=10109"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}