{"id":10093,"date":"2022-01-13T16:18:12","date_gmt":"2022-01-13T21:18:12","guid":{"rendered":"https:\/\/rqmo.org\/sources-of-information-on-rare-diseases\/"},"modified":"2026-02-06T20:02:20","modified_gmt":"2026-02-07T01:02:20","slug":"sources-of-information-on-rare-diseases","status":"publish","type":"page","link":"https:\/\/rqmo.org\/en\/sources-of-information-on-rare-diseases\/","title":{"rendered":"Sources of information on rare diseases"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"10093\" class=\"elementor elementor-10093 elementor-2105\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1ef8e90 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1ef8e90\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5fff9e7\" data-id=\"5fff9e7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f212545 elementor-widget elementor-widget-menu-anchor\" data-id=\"f212545\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-menu-anchor\" id=\"top\"><\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5c9d7c3 elementor-widget elementor-widget-heading\" data-id=\"5c9d7c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Sources of information on rare diseases <\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3bf45af elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3bf45af\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-470fc02\" data-id=\"470fc02\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c92e2c4 elementor-widget elementor-widget-spacer\" data-id=\"c92e2c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-bb5237d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"bb5237d\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-058419d\" data-id=\"058419d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e2efe93 elementor-widget elementor-widget-text-editor\" data-id=\"e2efe93\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>We direct you to the most important official sites to find reliable information and resources for rare diseases. If you cannot find the information you are looking for or if you would like to be directed to resources in Quebec or elsewhere in Canada, contact our <a href=\"https:\/\/rqmo.org\/centre-irare-rqmo\/\">iRARE Centre<\/a>.<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-6e7b697\" data-id=\"6e7b697\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bc63ee7 elementor-view-default elementor-invisible elementor-widget elementor-widget-icon\" data-id=\"bc63ee7\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;zoomIn&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"far fa-arrow-alt-circle-down\"><\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6d53277 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6d53277\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-e4e0ae5\" data-id=\"e4e0ae5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-cf98b73 elementor-widget elementor-widget-heading\" data-id=\"cf98b73\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Orphanet<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6d01712 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6d01712\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-f99ab3a\" data-id=\"f99ab3a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e3ce754 elementor-widget elementor-widget-text-editor\" data-id=\"e3ce754\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The portal for rare diseases and orphan drugs. For the general public and professionals. More than 6,000 rare diseases listed. Information in 9 languages, <strong>including French<\/strong>. Resources in over 40 countries (Canada has participated in the past; there is some information in the portal).<\/p><p>For each disease, you will be able to find these resources : <em> (notez que les ressources des \u00c9tats-Unis ne sont pas incluses; voir ci-dessous ressources am\u00e9ricaines) <\/em><\/p><ul><li>Expert centres<\/li><li>Associations<\/li><li>Orphan drugs<\/li><li>Research projects<\/li><li>Clinical tests<\/li><li>Registries\/databases\/research networks<\/li><li>Diagnostic tests<\/li><\/ul><p>And the following documents:<\/p><ul><li>Signs and symptoms<\/li><li>Articles for general public (in French)<\/li><li>Recommendations for clinical practice<\/li><li>Emergency procedures<\/li><li>Disability: information on activity limitations\/participation restriction <\/li><li>Recommendations for anesthesia<\/li><li>Information about a drug<\/li><\/ul><h4>Commencez ici <a href=\"http:\/\/www.orpha.net\/consor4.01\/www\/cgi-bin\/?lng=FR\" target=\"_blank\" rel=\"noopener\">www.orpha.net<\/a> ou consultez la <span style=\"text-decoration: underline; color: #d55e27;\"><a style=\"color: #d55e27; text-decoration: underline;\" href=\"http:\/\/www.orpha.net\/consor4.01\/www\/cgi-bin\/Disease_Search.php?lng=FR&amp;search=Disease_Search_List\" target=\"_blank\" rel=\"noopener\">Liste de maladies rares d\u2019Orphanet<\/a><\/span><\/h4><p>You can also download the <strong><a href=\"https:\/\/www.orpha.net\/consor\/cgi-bin\/Education_MediaEvents.php?lng=FR\" target=\"_blank\" rel=\"noopener\">Orphanet app<\/a><\/strong>in six languages (iPhone or iPad) and <strong><a href=\"https:\/\/www.orpha.net\/consor\/cgi-bin\/Education_MediaEvents.php?lng=FR\" target=\"_blank\" rel=\"noopener\">Orphanet Guides<\/a><\/strong>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e95b640 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e95b640\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-23b36fc\" data-id=\"23b36fc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-667fc2d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"667fc2d\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-62d8f59\" data-id=\"62d8f59\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-85f4513 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"85f4513\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-690b4fe\" data-id=\"690b4fe\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-feb8872 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"feb8872\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<a class=\"elementor-icon\" href=\"#top\">\n\t\t\t<i aria-hidden=\"true\" class=\"far fa-arrow-alt-circle-up\"><\/i>\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-23277dd elementor-widget elementor-widget-text-editor\" data-id=\"23277dd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3><span style=\"color: #d55e27;\">Other sources of information<\/span><\/h3><ul><li><a href=\"http:\/\/rarediseases.info.nih.gov\/GARD\/Default.aspx\" target=\"_blank\" rel=\"noopener\">Genetic and Rare Diseases Information Center (GARD)<\/a><\/li><li><a href=\"https:\/\/www.diseaseinfosearch.org\/\" target=\"_blank\" rel=\"noopener\">Disease Infosearch<\/a><\/li><li><a href=\"https:\/\/rarediseases.org\/rare-diseases\/\" target=\"_blank\" rel=\"noopener\">Rare Disease Database<\/a> (National Organization for Rare Disorders)<\/li><li><a href=\"https:\/\/www.merckmanuals.com\/fr-ca\/accueil\" target=\"_blank\" rel=\"noopener\">Merck Consumer Manuals<\/a><\/li><li><a href=\"https:\/\/www.filieresmaladiesrares.fr\/les-23-filieres\/\">Rare Disease Health Networks (France) (filieresentreprisesrares.fr)<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK430685\/\">StatPearls &#8211; NCBI Bookshelf (nih.gov)<\/a><\/li><\/ul><h4>Genetic Disease, Gene, and Genetic Testing Databases<\/h4><ul><li><a href=\"https:\/\/medlineplus.gov\/genetics\/condition\/\" target=\"_blank\" rel=\"noopener\">Medline Plus &#8211; Genetic conditions<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK1116\/\" target=\"_blank\" rel=\"noopener\">GeneReviews<\/a><\/li><li><a href=\"http:\/\/www.ncbi.nlm.nih.gov\/books\/NBK22183\/\" target=\"_blank\" rel=\"noopener\">Genes and Disease<\/a> (National Center for Biotechnology Information)<\/li><li><a href=\"http:\/\/www.ncbi.nlm.nih.gov\/sites\/entrez?db=omim\" target=\"_blank\" rel=\"noopener\">OMIM<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/gtr\/\" target=\"_blank\" rel=\"noopener\">Genetic Testing Registry<\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/gene\" target=\"_blank\" rel=\"noopener\">Gene database<\/a><\/li><\/ul><h4>Experts and expert centres<\/h4><ul><li><a href=\"https:\/\/findexpertmd.com\/Patient\" target=\"_blank\" rel=\"noopener\">FindExpertMD<\/a><\/li><\/ul><h4>Clinical tests<\/h4><ul><li><a href=\"https:\/\/recherchecliniquequebec.com\/registre-essais-cliniques\/\">Public clinical trials registry \u2013 Clinical Research Quebec (recherchecliniquequebec.com)<\/a><\/li><li><a href=\"https:\/\/health-products.canada.ca\/ctdb-bdec\/?lang=fre\" target=\"_blank\" rel=\"noopener\">Search for a clinical trial in Canada<\/a><\/li><li>Clinical trials worldwide (including Canada): <a href=\"https:\/\/classic.clinicaltrials.gov\/\" target=\"_blank\" rel=\"noopener\">ClinicalTrials.gov<\/a><\/li><li><a href=\"https:\/\/euclinicaltrials.eu\/\">Clinical Trials in the European Union \u2013 EMA (euclinicaltrials.eu)<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/consor\/cgi-bin\/ResearchTrials_ClinicalTrials_Simple.php?lng=FR&amp;LnkId=49&amp;Typ=Pat&amp;fdp=y&amp;from=rightMenu\" target=\"_blank\" rel=\"noopener\">Orphanet: search for a clinical trial<\/a><\/li><li><a href=\"https:\/\/trialsearch.who.int\/\" target=\"_blank\" rel=\"noopener\">International Clinical Trials Registry Platform<\/a><\/li><\/ul><h4>Patient registries<\/h4><ul><li><a href=\"http:\/\/www.orpha.net\/consor4.01\/www\/cgi-bin\/ResearchTrials_RegistriesMaterials.php?lng=FR\" target=\"_blank\" rel=\"noopener\">Orphanet registries\/biobanks<\/a><\/li><li><a href=\"http:\/\/clinicaltrials.gov\/\" target=\"_blank\" rel=\"noopener\">ClinicalTrials.gov<\/a> (research registries are listed on this site)<\/li><li>Registries in which patients can register themselves: see our<a href=\"https:\/\/rqmo.org\/en\/rare-disease-research\/\" target=\"_blank\" rel=\"noopener\">Directory of Rare Disease Registries <\/a><\/li><\/ul><h4>Databases of books and scientific articles <\/h4><ul><li class=\"tabulation\"><a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pmc\/\" target=\"_blank\" rel=\"noopener\">Pubmed Central<\/a> (open access scientific articles)<\/li><li class=\"tabulation\"><a href=\"http:\/\/www.ncbi.nlm.nih.gov\/sites\/entrez?db=pubmed\" target=\"_blank\" rel=\"noopener\">PubMed<\/a> (more complete, but the articles are not all open access)<\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/browse\/#W3sic29ydCI6InB1YmRhdGUifSx7InNvcnRfZGlyZWN0aW9uIjoicmV2ZXJzZSJ9LHsiY3NyZi10b2tlbiI6IjA3OTNERjA2NDZFMDBGRjNfMjQ3MzVTSUQifV0=\" target=\"_blank\" rel=\"noopener\">Bookshelf<\/a><\/li><li><a href=\"https:\/\/ojrd.biomedcentral.com\/#:~:text=Orphanet%20Journal%20of%20Rare%20Diseases%20is%20an%20open,journal%20publishes%20high-quality%20reviews%20on%20specific%20rare%20diseases.\" target=\"_blank\" rel=\"noopener\">Orphanet Journal of Rare Diseases<\/a><\/li><li><a href=\"https:\/\/www.springer.com\/journal\/44162\" target=\"_blank\" rel=\"noopener\">Journal of Rare Diseases<\/a><\/li><li><a href=\"https:\/\/raredisorders.imedpub.com\/\">Journal Rare Disorders: Diagnosis &amp; Therapy <\/a><\/li><li><a href=\"https:\/\/www.sciencedirect.com\/journal\/rare\/vol\/1\/suppl\/C\" target=\"_blank\" rel=\"noopener\">Rare<\/a><\/li><li><a href=\"https:\/\/clinmedjournals.org\/international-journal-of-rare-diseases-and-disorders.php\" target=\"_blank\" rel=\"noopener\">International Journal of Rare Diseases and Disorders<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-63806db elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"63806db\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ef7491f\" data-id=\"ef7491f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-9e24eb1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"9e24eb1\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-9b68027\" data-id=\"9b68027\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1290e82 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"1290e82\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-e1ed72d\" data-id=\"e1ed72d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9e560cd elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"9e560cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<a class=\"elementor-icon\" href=\"#top\">\n\t\t\t<i aria-hidden=\"true\" class=\"far fa-arrow-alt-circle-up\"><\/i>\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-7efdcde elementor-widget elementor-widget-text-editor\" data-id=\"7efdcde\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3><span style=\"color: #d55e27;\">Information on drugs for rare diseases<\/span><\/h3><p>See our web page: \u00ab <a href=\"https:\/\/rqmo.org\/ressources-medicaments\/\" target=\"_blank\" rel=\"noopener\">Drugs &#8211; Resources <\/a> \u00bb<\/p><p>Pharmaceutical industry<\/p><ul><li><a href=\"https:\/\/fr.rarei.ca\/\" target=\"_blank\" rel=\"noopener\">The Canadian Forum for Rare Disease Innovators (rarei.ca)<\/a><\/li><li><a href=\"https:\/\/innovativemedicines.ca\/fr\/\" target=\"_blank\" rel=\"noopener\">Innovative Medicines Canada<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-bf5ceb4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"bf5ceb4\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-9984d23\" data-id=\"9984d23\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e74e0ce elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"e74e0ce\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-93280ae\" data-id=\"93280ae\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-dd34099 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"dd34099\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-6e2eeff\" data-id=\"6e2eeff\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b9d75e3 elementor-widget elementor-widget-text-editor\" data-id=\"b9d75e3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3>Organizations in the field of rare and orphan diseases<\/h3><ul><li><a href=\"http:\/\/www.raredisorders.ca\/\" target=\"_blank\" rel=\"noopener\">Canadian Organization for Rare Disorders (CORD)<\/a><\/li><li><a href=\"https:\/\/www.rarediseasefoundation.org\/\" target=\"_blank\" rel=\"noopener\">B.C. Rare Disease Foundation<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/consor\/cgi-bin\/SupportGroup.php?lng=FR\" target=\"_blank\" rel=\"noopener\">Orphanet<\/a> (Europe)<\/li><li><a href=\"http:\/\/www.eurordis.org\/\" target=\"_blank\" rel=\"noopener\">EURORDIS<\/a> (Europe)<\/li><li><a href=\"http:\/\/www.alliance-maladies-rares.org\/\" target=\"_blank\" rel=\"noopener\">Alliance Maladies Rares<\/a> (France)<\/li><li class=\"ds-c-list__list-item\"><a class=\"external\" title=\"Maladies rares info services (France)\" href=\"http:\/\/www.maladiesraresinfo.org\/\" target=\"_blank\" rel=\"noopener\" data-file_name=\"http:\/\/www.maladiesraresinfo.org\">Rare diseases info services<\/a><\/li><li><a href=\"http:\/\/www.rarediseases.org\/\" target=\"_blank\" rel=\"noopener\">National Organization for Rare Disorders (NORD)<\/a> (United States)<\/li><li><a href=\"http:\/\/www.geneticalliance.org\/\" target=\"_blank\" rel=\"noopener\">Genetic Alliance<\/a> (United States)<\/li><li><a href=\"https:\/\/globalgenes.org\/\" target=\"_blank\" rel=\"noopener\">Global Genes<\/a> (United States)<\/li><li><a href=\"http:\/\/www.geneticalliance.org.uk\/\" target=\"_blank\" rel=\"noopener\">Genetic Alliance<\/a> (United Kingdom)<\/li><li><a href=\"https:\/\/www.rarediseasesinternational.org\/\" target=\"_blank\" rel=\"noopener\">Rare Diseases International<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c242f30 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c242f30\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-d42ea87\" data-id=\"d42ea87\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-605bf07 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"605bf07\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-be083ca\" data-id=\"be083ca\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c720bb8 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"c720bb8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<a class=\"elementor-icon\" href=\"#top\">\n\t\t\t<i aria-hidden=\"true\" class=\"far fa-arrow-alt-circle-up\"><\/i>\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a9d3cef elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a9d3cef\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-a340750\" data-id=\"a340750\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d4dcfb2 elementor-view-default elementor-position-block-start elementor-mobile-position-block-start elementor-widget elementor-widget-icon-box\" data-id=\"d4dcfb2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<a href=\"https:\/\/rqmo.org\/centre-irare-rqmo\/\" class=\"elementor-icon\" tabindex=\"-1\" aria-label=\"You did not find what you were looking for....\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-question-circle\"><\/i>\t\t\t\t<\/a>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<a href=\"https:\/\/rqmo.org\/centre-irare-rqmo\/\" >\n\t\t\t\t\t\t\tYou did not find what you were looking for....\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<p class=\"elementor-icon-box-description\">\n\t\t\t\t\t\tIf you haven't found the information you're looking for, we can help you. Our professionals are trained to find all the information on a rare disease and have access to specialized sites. <br>Contact our iRARE Centre. We are here to serve you!\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-29906d7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"29906d7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-15d4af6\" data-id=\"15d4af6\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-fd2ae10 elementor-widget elementor-widget-spacer\" data-id=\"fd2ae10\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Sources of information on rare diseases We direct you to the most important official sites to find reliable information and resources for rare diseases. If you cannot find the information you are looking for or if you would like to be directed to resources in Quebec or elsewhere in Canada, contact our iRARE Centre. Orphanet [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-10093","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10093","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=10093"}],"version-history":[{"count":1,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10093\/revisions"}],"predecessor-version":[{"id":10094,"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/pages\/10093\/revisions\/10094"}],"wp:attachment":[{"href":"https:\/\/rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=10093"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}